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Offline Stevieanne

Total Posts Last Post Last Seen Joined
561 05/13/11 05:19:05 01/08/12 09:39:56 01/30/05
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12/29/08
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My Occupation

Retired due to Alpha1 image
I'm now happy  to act as part time carer for my wonderful DBH...
He has Bronchiectasis (a chronic lung condition) Osteoporosis (he has lost 4 inches) and Osteoarthritis in his spine and hips.

My Bio

I was born in the east end of London, the eldest of four children. My parents marriage was a stormy one and us kids ended up in care. This was a truly dark time in my life that I don't care to revisit.

I met my husband Anthony at 18 and we were married on Christmas Eve the same year we met,1976.A miscarriage with complications at 22 meant I could never have children, something that devastated me then but now... maybe it was for the best.

I've always been active, I used to run distance and the hurdles at school in the Summer and played left back for the school hockey team (my brother used to tease me that it was left back in the changing room!!). I started smoking in my teens but was not what you would call a heavy smoker, I just wanted to fit in with the "cool" crowd!!

Back in 1999 we were going through a tough time at home and as my stress levels went up so did my smoking. So in the Spring of 2000, when I noticed I was getting slightly SOB, I put it down to being over 40 and cut way down .Then Summer of that year I had a breakdown of sorts and was really poorly. For several weeks I had a terrible cough and had trouble breathing but again thought it was nothing worse than a summer cold.

I have a very special and dear friend called Jennie who like me had a difficult childhood and we have kinda adopted each other, as far as we and everyone who knows us are concerned, we are sisters!! Her husband has Huntington's Disease and I was popping over every couple of weeks to help out wherever I could (or where she would let me!!) June 22nd 2003, the high street in Beckenham, Kent, around about 11-00am. I came over dizzy, nauseous, sweating, sob. Jennie got me across the road to a cafe and after a coffee I felt better and put it down to the heat and low blood sugar.

But as the day went on I had more and more trouble breathing and after a disturbed night was taken home early by car, thankfully a friend was there to run me back.

By now I had frightened both my self and everyone half to death so the Doctor was called out. He was actually a locum but he was very nice and said that I probably had C.O.P.D and left me with a course of antibiotics and steroids and a Salbutamol inhaler that I was to use if I felt the need.

My breathing did improve for a while but then I began to notice that just doing simple things like putting out the washing or hoovering made me sob so I would have to sit down and catch my breath before I got on with whatever it was I was doing. So when I went for my flu jab the practice nurse gave me a peak flow test (couldn't get over 150) and prescribed a second in haler, Qvar. Again it improved for a while then went off again so a third inhaler, Serevent.

By this time it was obvious that treatment was not working and so when I saw the new nurse, she decided to send me for X-Rays and a full blood work up, including testing for Thyroid problems because I'd lost so much weight(93lbs at my lowest). But they all came back normal so it looked like we were back to square one.

Sharon's specialty is Asthma and breathing difficulties and she had just finished a course before she joined the practice. She suggested going for another blood test (yuck, more needles!!) Eureka!!! I had low Alpha1-Antitrypsin levels now all I had to do was wait for the consultant's appointment.

Then disaster struck. I got a chest infection. I was coughing so I couldn't sleep, I had to sit bolt upright as I couldn't breathe, I truly thought that the next breath could be my last. I scared the crap out of Anthony never mind myself! A course of pills to get me to my appointment and more bed rest. By this time my breathing was so bad we had to arrange for hospital transport.

Once at hospital I couldn't perform a peak flow or spirometry test, the nurses were panicking as they couldn't get a blood pressure reading and and my O2 SATS were 85%!!!

Then there was a mad rush to get me a nebulizer and O2 for when I got home, no way was I going to stay in hospital, if I`m poorly I want to be at home!!

But at last we knew what was wrong, I was A1-AD(zz) I have now been on Spiriva since the 6th of April and know that I have to wait and let it do its job. But at least I am more optimistic now, I have my darling husband (even if he does fuss!!) I have my "kids", I have my extended "family', I have made some good friends in the States who I have met over the net who have been really great in their support.

My Hobbies

I still love boot sales, flea markets, thrift and charity shops...I collect mainly 60`s ceramics (J & G Meakin) My favourite designer is Jessie Tait...but I`ve got some pieces going back as far as late Victorian.
I love books and reading...I have shelves and shelves of all my favourite authors, such as Stephen King, James Herbert, Mark Billingham, Kathy Reichs, Jonathan Kellerman, James Patterson....Authors from where I live like Martina Cole, Gilda O Neil...and other authors from the UK such as Katie Flynn, Maureen Lee, Annie Murray, Rosie Harris.
I used to love coss stitch embroidery but due to poor eyesight and extreme tremors due to my post transplant meds, I`m unable to continue with it...so now I`m hooked on PSP. I love the choice of mediums...the tubes, scrap kits, even the unusual fonts...Having an idea and putting it all together, it satisfies my artistic side.
I am still fairly greenwhen it comes to PC`s but I do my best and I DO love my games...I`m a Club Pogo member and have been lucky enough to find some places that do free down loads (as long as you don`t mind adverts with them) I love Mah Jong and hidden object games... I have a Nintendo Wii and a D.S... my favourite game is Animal Crossing.
I like think I`m a fairly caring, friendly, positive person...I`ve been told I`m a good listener. My favourite sayings or philosophies are :
"Spread love where ever you go. Let no one ever come to you without leaving better and happier."
"Always treat others as you would wish to be treated"
"I`m too blessed to be stressed"

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I just want to share this....a song I grew up with, in the East End of London

A mother was washing her baby one night,
The youngest of ten and a delicate mite.
The mother was poor and the baby was thin,
'Twas naught but an skelingtin covered with skin.

The mother turned 'round for a soap off the rack.
She was only a moment but when she turned back
Her baby had gone, and in anguish she cried,
"Oh, where 'as my baby gone?" The angels replied:

Oh, your baby has gone down the plug 'ole.
Oh, your baby has gone down the plug.
The poor little thing was so skinny and thin,
He should 'ave been washed in a jug, in a jug.

Your baby is perfectly happy;
He won't need a bath anymore.
He's a-muckin' about with the angels above,
Not lost but gone before.

My blog

  1. Musings on nearly 3 years post Transplant

    04/21/10 03:29:53 | 0 Comments

    You know you’re a lung transplant patient when:

    You have pills, masks and antibacterial hand gel in your pocket or purse
    Your signature looks like you used an Etch-A-Sketch to sign, because of drug induced tremors You know your creatinine, lung function, white cell count, and prograf level intimately.
    You talk to your healthcare providers like they are friends (or enemies?).
    You frequently spout out four letter words
    Your cough-sniffle radar is on high alert in public...
  2. More about me

    09/30/09 11:37:20 | 0 Comments

    Hello again one and all... I`ve been trying to keep up with everyone in between getting on with life and caring for my DBH...whose health problems have been a cause of great concern to us all...Now I`ve seen it from both sides image I`m Stevieanne, now 51 and living in Essex, UK. I am...